In 1976 I was multiply stabbed in the heart 5 times. As my body began to fade,(I needed 8 transfusions and open heart surgery)I clearly remember dialogs like the ones Jill spoke of. The dialogs were extremely rational and comforting and got me through the worst of the moments. Beyond that, another series of amazing gifts followed. I could mentally ask a question, and get a perfectly clear answer, or image, which proved to be correct every time. It has been a long journey. But because of my incident... the magic of the universe unfolded, and the reality of such knowledge and abilities has stayed with me... Being stabbed became one of the better gifts I have received in life. Jills U tube talk rang so true, and really does inspire one as to the powers we have... Just knowing that we have the ability to tap into the "Right" is a gift, remembering and living it is the quest. I am a stained glass artist as well... After the event... All the best. Life is an amazing journey!
My mother, age 79, had a stroke the end of August. I have been the main caretaker since then and I am so grateful to have read Dr. Taylor's "My Stroke of Insight". The book has provided me with so much insight into both the brain as well as caring for my mom. When she was in florida immediately following her stroke, many of the hospital nurses were rude and disrespectful. Dr Taylor's line my Mom "is wounded, she is not stupid or deaf" has been tremendouly helpful. Her recommendations for caretakers in the appendix has been my bible. Reading the book has given me the knowledge which translates to power as I continue to advocate for my beloved mother. Thank you Dr. Taylor for sharing your journey in this very emotional and insightful book.
I had two strokes - December 2008 (my arm) and March 2009 (my leg, mouth and arm). I'm glad I'm still alive! the drs didn't pick up the first stroke. my right side is affected and have clots in the left side of the brain. I can't do maths any more - that's hard! - and have trouble with spelling and other things. I'm going to exercises 3 times a week and go to tafe for maths, reading and stuff. I have two daughters - Steffi is 18 and Lily is 9. Steffi looks after me. I get really tired still. thanks for writing this book - I read few times now
It was a cool, stormy day October 11, 2007 in Mississippi. I awoke with the worst headache I had ever had thinking it was the usual migraine attack. I took 800mg Ibuprofen, hoping it would relieve the pain and continued getting ready for my day at Blue Mountain College. I was only 34 years old and had gone back to school to obtain my teaching degree at last. At about 9:30 am I knew it was going to be a bad day, but kept plugging away trying to pay attention to my instructor. All of a sudden I felt this "explosion" in the right side of my head above my eye, the worst pain I'd ever experienced, and then the classroom began to swim in my vision which had become blurry. I was also fighting nausea and completely tuned my teacher out trying to get control of myself and whatever was happening. Thankfully, class was over soon, but I had yet another to go to. Only this time, I nearly vomited all the way there. As soon as I reached my classroom I ran to the bathroom. Upon returning to the room, I was blinded by the light from the windows and rushed to close the blinds. I also couldn't take the noise of the students chattering nor the sounds coming from the piano. I returned to the bathroom 2 more times before I had to leave. I was scheduled to give blood later that day, so I made my way to the blood mobile to cancel my appointment (the tech didn't even mention how badly I must've looked) and then proceeded to inform my next instructor I had to go home. I then drove 45 mintues with my aching head, dizziness and nausea. By this time I had already taken another 800mg of Ibuprofen with no effect. Upon reaching my home around noon, I decided to take a migraine pill and go lie down with the room completely darkened. I didn't awaken until my husband arrived at 5:30pm. I told him weakly that he had to take me to the ER. There, they took their time all the while I'm suffering in the blinding lights of the room and vomiting over and over until I'm vomiting blood. Still, they did nothing for 2 hours. They finally took me down to have a CAT scan, of which I became extremely aggitated and had a panic attack due to the noise of the machine. Over another hour later, they did a blood test and discovered I was pregnant. I had had no symptoms at all. I had been passing in and out during all of this and barely remember the doctor telling my husband they couldn't do a contrast scan because of my pregnancy. At some point I completely lost consciousness, but came to as I was being taken by ambulance to the nearest hospital that was more equipped to deal with the situation. I later found out that when the local doctor had received the CAT scan results, he flew into a panic then. He told my husband he didn't know what the mass was behind my eye and he couldn't deal with it. So, after arrival at the larger hospital my husband says they had a team of neurosurgeons, my OB/GYN, and other specialists all pouring over an MRI I don't remember having. The only thing I remember is waking up briefly in a dark room, then sometime later a doctor asking me questions of which I can't physically answer. Then, I woke up in a another dark room hooked up to machines, staring at a nurse's station that looked more like a prison guard's office and another room opposite mine filled with all kinds of machines. It was eerily quiet and I knew it couldn't be good for me. That was 3 days later. I spent another 3 days in the Stroke ICU battling nausea (partially because of pregnancy), pain in my head and sensitivity to light. I had no windows. The only way I knew it was day or night was the shadow on the nurse's station wall of the flag pole outside. Later, I found out that the doctor's didn't expect me nor my unborn child to survive. I was released and nine grueling months later I gave birth to a healthy baby boy with nothing wrong with him. I returned to college and struggled to finish the semester. I didn't go to therapy (nor was there any suggested), but I figured it was the best thing for me to do. At least try. In December of 2007 I went for a check up at the neurologist's office. I had a follow up MRI and was very surprised to learn my blood clot had completely dissolved. I broke down and cried as did his assistant. My baby had been progressing normally as well. That was a week before Christmas. Talk about your Christmas wishes! I also went the following Spring semester with a little more success although it was hard earned. All my instructors and college faculty were great and had continued to work with me. I was given no special treatment and earned everything I got. On June 4, 2008 I gave birth to my son who was very healthy and perfect in every way. God answered several miracles for me. I don't know what he's got in store for me and my son, but I know we were saved for a reason. So, to all of you who are struggling with life after a stroke, don't give up. I'm not completely healed, and have lots of memory problems still yet, but I take it day by day. I try not to get frustrated and sometimes fail miserably. But, like the Bible says, With God all things are possible. You just have to trust in Him.
I had a central brain ischemic stroke in February of 2007. I have since made a truly amazing recovery and comeback. I was in a coffee shop recently reading Dr. Taylor's book (ch. 9 to be exact). Tears were running down my face, but I didn't even notice. A woman walked past and said, "Wow. That must be a good book." I replied, "It is. But trust me, you don't want this book to be personal." She looked at me quizzically and walked away.
Thanks for writing this book. I'm sure you've heard this many times before, but I thought I was the only one who ever lived this odyssey.
I just ordered "My Stroke of Insight" on CD for my mother
Last month my mother, 85 years young, developed temporal arteritis which had many of the same signs as stroke -- loss of speech, loss of balance, difficulty swallowing, and most heart-breakingly loss of almost all of her vision. She had always been my book-buddy, trading interesting volumes back and forth with me via mail. I credit her for instilling in me a love of reading which has kept me consuming a couple books per week for my entire adult life. When I ran across Dr. Jill's book this weekend I knew my mother would love it, so I ordered the audio version from Amazon.
I'm only halfway through the book myself (after 24 hours) but already I marvel at Dr. Jill's strength, insight, bravery and ability to share what it was like to take that long dark scary ride into the preverbal world. Well done!
I'm not sure if my medical situation is what you guys are looking for. I was in a horrible car wreck and put in a coma for 3 months. I suffered a Traumatic Brain Injury which has kept me from being able to walk without aid for a year and a half now. I've made the switch from the wheelchair to the walker, but I still lack balance. So medically, I have not had a stroke, but it seems that my medical issues have some overlap with stroke victims.
I think what you guys are doing provides a much needed outlet for patients like me, so my hat is off to you all. I'm hoping one day I will regain the ability to walk and do something useful for other patients as you have done.
My daughter loaned me "My Stroke of Insight", which she read for her book club, because I have recently had some very severe emotional pains over the past few years. This book, more than any other, has helped me trust what was already inside me and release the negative emotions that had been pent up for years. It has also helped me let go of neural pathways of negativity that I no longer desire in my personality. Dr. Jill Bolte-Taylor's experience and life and her journal of it for the rest of us is such a wonderful example of how such a horrible thing can be transformed into such a wonderful blessing! Fortunately, I have not had a stroke and hope never to experience one; I am 61 years of age. I am eternally grateful to Dr. Taylor for her bold sharing and honesty and her life. Thank you, Dr. Taylor!
Flicker vertigo/photosensitive epilepsy/ PowerPoint + possible stroke
One year ago I was a doctoral student at the University of Ottawa. Shortly after the beginning of the academic year, I attended a PowerPoint presentation about scholarships. At the end of the presentation, the presenter was running out of time, and she flipped quickly through a series of slides that happened to contain images of charts of various sizes and shapes. The charts were black on a white background so high contrast. Shortly after this I started experiencing changes in the way I was thinking (shifting to thinking in pictures rather than language) and walking with an increasingly unsteady gait to the point of falling over, being "thrown" into walls, and eventually blacking out several times. I have no memory of significant portions of my life during this time. I am uncertain if I was simply at the "wrong place at the wrong time" or if I was the unwitting victim of somebody's ill thought out experiment (the University of Ottawa touting itself as a research intensive university). Although I am much recovered, I still walk with a cane and am experiencing differences in the way that I process information that I still find somewhat distressing. Part of the horror of my experience is that I come from (and am currently back in) the Northwest Territories. When I went to emergency in a desperate attempt to hold onto my doctoral program, it was assumed that I was either intoxicated or taking illicit drugs. Because of this, I received no medical care for several months and I still have no answers or suggestions for what I should do beyond going to the Mayo Clinic. If anyone out there has had a similar experience or who can provide me with help or advice, I would certainly appreciate hearing from you. I am also interested in letting people know that PowerPoint is a potential trigger for a significant and debilitating neurological event. I have reported my experience to Microsoft, but what they will do with it is anybody's guess.
My stoke hit me in Oct 1999 at the age of 39. I had no warning whatsoever, no symptom that something was wrong and it happen so fast, I can honestly accept that I am still here because of divine intervention.
It happened right before bed when I heard in my right ear a buzzing which became louder and louder when suddenly, my left eye skewed upward sharply. I though my eye muscle broke at first and had to cover my eye with both hands as my vision went haywire. My boyfriend looked horrified when I took my hands down and he saw my left eye pointing up towards my head. Within seconds, I said, "I think I'm having stoke". Luckily a good hospital was near by and we sped there. During the short ride, I could feel myself collapsing inside and as the left side of my body begin to paralyze. By the time we arrived, I could no longer hold up my head straight. I was rushed to have a cat-scan to determine what type of stroke I was having which turned out to be a right mid-brain embolisim.
I remember the whole thing, but it was as if I were an observer as well, watching my body die as I watched. I remember first my parents being at my bedside and then my daughter who was 20 at the time. I was trying to tell her not to worry, and also to ask the medical staff what was happening, but they could not understand me which I found frustrating to say the least, but later found out I was saying such things as "did you pay the delivery boy?" or some other nonsensical statement. The Dr.s administer the drug tPA, "tissue plasminogen activator" to dissolve the clot. While all waited to see if the drug would do its job, I remember seeing the look of horror on my beautiful daughters face and began my own fight back. I felt a battle within, one I knew I could not lose as it was a matter of life and death, and not even the physical death of the body, but the possibility of becoming a prisoner of my own body. I remember feeling a part of me as if I were in a tin can of sorts, part of me trapped inside, but another part of me on outside looking in. I began kicking with my right leg which was the working one and swinging my right arm as if I were physically fighting someone. I knew I could not stay here or leave my beautiful daughter in pain. I fought like hell. I was then air-lifted and transported to the University of Michigan. Within 12 hours, I returned. I had won!! I was even smiling at my arrival back! I knew I had survived by determintion and much GRACE. The Dr.s said I was a miracle. My body returned to normal with the exception of my left eye which was still skewed upwards. I wore a set of glasses with a prism covering the affected eye which enabled me to move about for six months as the waited to see if it would correct itself but did not so had corrective eye surgery to repair it. One would never know to this day that I survived such a devastating thing.
I know that between my own will to survive, my spiritual guides and angels, my loving family and my higher self, I was able to not only survive, but begin to thrive because of it. My whole life was filled with emotional pain, and the thought and feeling that I was alone in the world. This caused me much pain which resulted in me becoming an addict. I was addicted to cigarettes, alcohol, relationships and my own emotional pain. I had been diagnosed as bi-polar because of my 'imbalanced' life. A prisoner of my own device. It is my belief that the stroke I experienced was the beginning of my journey home and my mission here. Healing of my spirit and helping to heal others through my own experience. We are all each others teachers.
Today, I am a greatful and adoring grandmother of four and half (my daughter is expecting her third in Feb), a new wife (married in Jan 09), and an advocate of soul-healing with the inner child/self resulting in re-birth of the spirit within. I was lost, but now am found. Amazing Grace.
I am a 32 year old women, who had a stroke last tuesday morning, August 11th 2009. I was working out when it happened, I somehow managed to drive home (although I dont know how), and I even managed to take my 6 month out to babies r us to have his 6 month pictures taken.
It is a miracle from hashem (g-d) that I was able to take care of my son that day. I went to sleep early on tuesday night, and on wednesday morning, my husband made me call my house doctor first thing to get an appointment. He wanted me to see a neurologist, which I managed to that afternoon. The Neurologist scheduled an MRI, which I had at 6pm wednesday evening. When I came out of the MRI, my husband gave me the news that I have to be admitted to hospital, as I had a huge stroke!!!
Thursday and Friday were busy days filled with lots of tests, one after another.
I managed to come home friday evening, and have lots of dr appointments this week and next as follow ups. It was truly a blessing from hashem (g-d) that I am ok.
The stroke hit my left frontal lobe, which affects part of my short term memory, word formation etc. The only thing that I kept saying was my cheek felt weird.....
TG, I am ok and will continue to get better every day. To date, there is no known cause for what happened, however I am still having of tests this week, to help rule out everything.
This was a very scary experience, my 6 month old son needs his mommy.
I am a lymphoma survivor. I had a bone marrow transplant in 2004. After 20 days of the transplant I went into comma for 2 weeks, caused by a shutdown of my liver, due to a condition known as Vino occlusive disease of the liver (I was in a severe state and a 2% chances of surviving)after the comma a CT was performed because the Dr. was fearing that the high level of bilirubin in my blood will deposit on my brain causing damage. The CT scan did not show any signs of brain damage but I could not remember many things, for example I totally forgot that I had a boyfriend, and my boyfriend used to come to see me at the hospital, but I did not know who he was, I remembered him as a friend closed to me, until one day I am having a flashback of us being together and then I realized he was more than a friend. I forgot some people that were my coworkers, one day I received a visit of a girl that worked we me, but I could not put a name into that face. I remember looking at her like "her face looks familiar" but I did not even spoke to her, like I did not know who she was. I am bilingual (Spanish and English) and immediately after the comma I could not speak English, people will speak to me in English and my mom would translate my response. All my movements were impaired at the very beginning, I could not walk, eat with my own hands, my hands would shake a lot. To put sugar into a coffee cup, I learned that I had to put the cup side to side to the sugar bowl, otherwise from the traveling of the spoon from one side to the other with my hands shaking so bad, no sugar was left by the time it reached the coffee cup. Until this moment I know that my short term memory has been affected, part of the language has been affected, I remembered my self trying to find the word carrots in my head without any luck, Oh! I forget the names, I am still sometimes trying to remember names like Oh my God what is his/her name? for people that I see everyday and I cannot address them directly calling them by their names. If I am too stressed (physically or mentally) my nerves jump very frequently, specially my left eyelid, and usually is in my left side. Are all these sings and indication that my brain suffered and had a damage that was not able to show in a CT scan? I would like to have an answer to this. Thanks so much for this space to share stories.
I had my stroke back in 2001.I don't know what kind i had.But people is finsihing my sentecne for me.They won't give me time to finsh.And i still have trouble with slurring my word's sometime.I need some help.Thank you.
Will was in his first year of a medical residency when he was struck down by a bi-laterial thalamic stroke. It took close to 13 hours or more before he was found and taken to a hospital. You can imagine the days that followed, as he could not walk, talk, eat, or remember what had happened, many thought there would be little recovery. Since that day Will has regained all of his physical abilities and most of his cognitive abilities. At a year and a half he is still experiencing remarkable recovery. I want to tell people there is no 6-12 months healing than it is over in the stroke healing process. There is life after stroke. Will and I were married a year after the stroke (we had been sweethearts for five years before the stroke). He is working his way back to residency and I believe he will make it. Feel free to follow his blog and contact us with any questions http://willsrecovery.blogspot.com/
on 10-13-06 my life changed forever.I was in the back seat of a car asleep no seatbelt my husband fell asleep and rolled the car in a ditch I was thrown from the backseat through the frontwindshield back into the backseat I broke my back and suffored a brainshear and rightfrontal bleed it has taken me 3years to even be able to read again and a friend told me about this book and I just want jill to know how incredible her work truley is and how helpful it has been to me its so nice to read and know that I am not the only person to have felt so insane and that things are going to continue to improve as long as I keep working to make things o.k. for me and adjust things for my own way I will be o.k. so THANK YOU SO VERY MUCH
Exactly 1 year from now, when i was 19 years old, i experienced something that forever changed my life, I had a stroke, it was not a minor or mini stroke but it was a major ischemic stroke at the right side of my brain that rendered me paralyzed on my left side and unable to feel any sensation whatsoever. A congenital cyst on my subarachnoid membrane was pressing on my brain so much that when my blood pressure rose it caused the stroke. I guess you could say that the left side of my body got hit twice since the majority of the cyst was directly pressing on my left cerebellum and i had a stroke on the right side of my brain. I also experienced mental symptoms like confusion, disorientation, change in the way i speak and my consciousness even gradually decreased until all i can do is feel asleep no matter how hard i try to be awake. My left eye rolled towards the inner cantus of my eye socket and the right eye just kept on rolling but I did not know this, I just felt very dizzy, nauseous and it was hard for me to focus.
The doctors did an emergency craniotomy surgery on me, they opened up my skull to relieve the pressure and hoped that the cyst was CSF filled not pus or blood. When i woke up in the recovery room the first words i said was "why hadn't they still operated on me?" with an annoyed look on my face.
When i was transferred to my room it was there where i saw my family, relatives and friends who rushed to the hospital to see me. They all put on a brave face for me but i remember seeing some of them holding rosaries and seeing their eyes sore from crying. I cracked jokes to make them laugh so that I can assure them that I am going to be alright. They know that I am in a very serious situation, I'm paralyzed and maybe some of them were scared and maybe even pitied me, but i never pitied myself or felt scared because I know no matter how high the mountain i will have to climb by all means i will climb it whatever the odds are.
I was bed ridden, i couldn't move, sit, feel or taste. I thought i was sweating but when they looked there was fluid coming out of the back of my head. I couldn't stand nor sit and I talked like i was drunk. When i tried to move I would put all my effort on moving my hand but often times I didn't get any response, it felt like a ton of weights was placed on my body that even breathing got hard.
To cut the very long story short I endured all hardships, I persevered and recovered in a way that exceeded my Doctors,Nurses and Therapists expectations of me or of my condition. I regained not only my movement but I also regained most of my strength so much that I enrolled myself to the gym, I regained my ability to feel and talk properly. I can walk, jump and run properly now and its pretty amazing when i remember that not so long ago I couldn't even urinate. I returned back to school as a 4th year nursing student and I am even having one of the highest scores in our class. I want to be an inspiration to other people, and I have been finding ways to get my message out, maybe practicing as a nurse and writing here are some of them. I will continue to try my best to excel because i feel now that I am no longer doing this for myself but I am now doing this for people who are suffering and losing hope. I feel a very unique bond with people who had a stroke and i am naturally inclined to care for them now. I consider them part of myself, like brothers and sisters. To all who had a stroke and are now losing hope and to Dr. Taylor, I hope to see you in the future, stroke made us stronger not weaker because stroke is nothing compared to the will of the heart.
I had a right-side hemorrhagic stroke on April 4, 2008. I spent 5 days at Mission Hospital in Asheville, NC and then 17 days at CarePartners, a rehab hospital also in Asheville. I have made quite the recovery. I am a photographer and videographer and have relearned to use my cameras, which is most important to me, including my 26-pound broadcast camera. I have walked 7 miles on the beach. I have walked 3 miles out and 3 miles back on the Appalachian Trail to the top of a mountain with 1500 feet of elevation gain. I got back on my bike. Recently, I rode my mountain bike 22 miles on the beach in less than 2 hours and rode a 20-mile bike trail in an hour and 15 minutes. I walk or bike every day as well as doing my OT exercises every day. I recently competed in the Macon County, NC, Senior Games, which I was training for when I had my stroke. I am going on th o compete in the NC Senior Games in September. I am going to ride in and be a letter writer to raise money in NC Stroke Associations “Cycle for Life” bike ride this October. They are also featuring me in the June issue of Update stroke. I was a motivational speaker at Life Care Centers of America’s annual meeting in June.
It's all in my blog including my recovery, the speech I made, and my DVD idea. Sceoll down, it is long. http://strokedvd.blogspot.com